Long-term effect on physical, mental, and social wellbeing due to endometriosis
"Results from the World Endometriosis Research Foundation’s EndoCost Quality of Life Study was published this month in Human Reproduction , showing long-term impact on work, relationships, and the sex-lives of women with endometriosis.It is the first time an international multi-centre survey involving a large group of women with endometriosis in all phases of the disease has been conducted.
The aim of the study was to investigate the extent to which the management of endometriosis and the symptoms that persist after treatment affect quality of life in women with the disease.
The EndoCost Quality of Life Study is part of the WERF EndoCost Study, a cross-sectional study among 931 women with endometriosis treated in 12 tertiary care centres in 10 countries.
How the EndoCost Quality of Life Study was conductedWomen diagnosed with endometriosis, who had at least one contact related to endometriosis-associated symptoms during 2008 with a participating centre, were enrolled into the study (mean time between diagnosis and the study was 5.5 years).
Participating women were asked to complete validated questionnaires, in their own language, assessing the effect of endometriosis on education, work and social wellbeing, endometriosis-associated symptoms, and health-related quality of life.
Key findings from the WERF EndoCost Quality of Life StudyDuring a lifetime perspective, endometriosis had a significant impact on key aspects of daily life:
- Endometriosis affected work in 51% of the investigated women, and
- 50% of the women stated that endometriosis had a profound impact on their relationships
- 59% continued to have painful periods (dysmenorrhoea)
- 56% reported painful intercourse (dyspareunia), and
- 60% of women reported chronic pelvic pain.
Painful sex (dyspareunia), chronic pain, and the number of co-morbidities had an independent negative effect on both the physical and mental components of quality of life.
Other factors that correlated with these women’s quality of life were affected work (negative) and having a partner present for support (positive)."